Behind every question, every quiet “Could this be Lyme?” is a person fighting to be heard. At LymeCare, we’re still here — listening, believing, and pushing forward — because patients deserve more than doubt and delay. They deserve care that sees them.
There are days when we wonder if people are still listening.
The news cycle moves on. Awareness months come and go. There’s always a new story demanding attention. And meanwhile, in the quiet background of it all, people with Lyme disease are still waking up every morning with the same question: Why is no one talking about this anymore?
The thing about Lyme is that it doesn’t stop just because the headlines move on. It doesn’t get quieter. If anything, it’s spreading — into new regions, into more bodies, into the lives of people who had no idea what was coming when they pulled a tick off their skin.
At LymeCare, we don’t need a trending hashtag to remember that. Because we hear from those people every single day.
Sometimes they write us after months — or years — of bouncing between doctors. Sometimes they come to us straight out of desperation, newly sick and already overwhelmed by how quickly they’re being dismissed. Others reach out quietly, hesitantly, because they’re scared to say the word “Lyme” out loud after everything they’ve been told it isn’t.
These aren’t isolated cases. This isn’t rare. And it isn’t vague.
It’s real people — losing jobs, losing relationships, losing their sense of who they are, because the system hasn’t caught up with the reality of what chronic Lyme looks like.
And the worst part? Most of them have been told at some point that it’s all in their head.
That kind of dismissal doesn’t just delay treatment. It changes people. It breaks down their trust in doctors. It shakes their confidence in their own instincts. It isolates them from friends and family who just don’t get it. It’s more than frustrating — it’s traumatic. And it’s something we hear about far too often.
That’s why we’re still here. That’s why we keep talking about Lyme, even when the conversation gets hard, even when the science is messy, even when the public gets tired of hearing about “tick bites.” Because the people living with this disease don’t get to tune out. They don’t get a break.
We keep showing up for them — not because we have all the answers, but because we know how powerful it is just to be believed.
We’ve seen firsthand what happens when someone finally hears, “You’re not crazy. You’re not imagining this. What you’re feeling is real — and we’re going to figure it out together.”
We’ve seen lives start to rebuild from that moment.
It doesn’t mean recovery is easy. Lyme is complicated. Treatment is rarely linear. And everyone’s journey is different. But being seen, being heard — that’s where healing begins.
It’s not just about the medicine. It’s about validation. About support. About not having to fight every single step of the way just to be taken seriously.
That’s why we do what we do.
Behind every form we send out, every assessment we write, every guide we create — there’s a real person we’re thinking about. Someone who’s scared, exhausted, maybe even a little broken, but still showing up and asking for help.
So no, we don’t have a shiny new headline to share right now. There’s no “breaking news” moment in this update. Just a reminder — to ourselves and to anyone reading — that this work still matters.
Because the fight isn’t over.
Because Lyme patients deserve more than skepticism and silence.
And because sometimes the most radical thing you can do for someone is simply to say: I believe you.
We’re still here. We’re still listening. And we’re not going anywhere.
We’re Not Done — And Neither Are You
If you’ve made it this far, maybe you’re someone who knows what it’s like to live with unanswered questions. Maybe you’ve sat in a waiting room rehearsing how to explain your symptoms again, trying to make them sound convincing. Maybe you’ve felt the weight of being told, in so many words, that your experience doesn’t add up.
Or maybe you’re someone who cares — someone trying to understand what a friend or family member is going through. Someone who’s starting to realize that Lyme isn’t just about ticks and rashes. It’s about real people navigating something that’s messy, lonely, and too often ignored.
Either way, we want you to know this: You’re not alone in this. And you’re not imagining it.
The road through Lyme disease is rarely straight. It loops. It backtracks. It tests your patience and your sanity. But you shouldn’t have to walk it blind — and you definitely shouldn’t have to walk it alone.
That’s why we keep doing what we do. Because while awareness is the first step, it’s not the finish line. Awareness means nothing if it doesn’t lead to change — in treatment, in understanding, in how we show up for the people living with this every day.
So we’ll keep raising our voices for the ones who’ve been silenced. We’ll keep writing, researching, answering questions, and holding space for the conversations that need to happen. Not because it’s easy. Not because it’s perfect. But because it matters.
This isn’t just a story about Lyme disease. It’s about what happens when people refuse to give up on each other. When they decide that being sick shouldn’t mean being forgotten. When they say, “We see you. We believe you. We’re not going anywhere.”
And neither should you.
If you’re here looking for help, hope, or just a reason to keep pushing — let this be it.
We're still listening.
We're still fighting.
And we’re in this with you, all the way.